Episode 2: What is Disability?
1. Sin model of disability - disability is seen as a sign of one’s own/parent’s sin. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
2. Eugenic Model of disability - disabilities are a bad variation that needs to be “weeded out” of the population. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
3. Charity model of disability - disabilities exist as an opportunity for non-disabled people to demonstrate their goodness.⠀⠀⠀⠀⠀⠀⠀⠀⠀
4. Medical model of disability - disability is a medical problem to be fixed or motivated through drugs, surgery, technology, or therapy. ⠀⠀⠀⠀⠀⠀⠀⠀⠀
5. Social model of disability - encourages changing society to make it more inclusive, not trying to fix people who don’t need fixing.⠀⠀⠀⠀⠀⠀⠀⠀⠀
6. Cultural model of disability - encourages people to see disability as a form of diversity like race, gender, sexuality, religion or ethnicity.⠀⠀
Earned his PhD in Disability Studies in 2009, with his work interests addressing the mutual support roles of siblings in aging families and issues of future planning for people with Intellectual Disabilities and Disability Studies critiques of family disability research.
John is currently working with the State Systems research team at the Institute for Community Inclusion (ICI) at the University of Massachusetts at Boston on systems change and employment issues for people with disabilities. John co-founded the Sibling Leadership Network. This network connects brothers and sisters of people with intellectual disabilities, siblings with intellectual disabilities, and professionals interested in policy, services, and research related to siblings and disability. John also co-founded the Massachusetts Sibling Support Network (MSSN) and Supporting Illinois Brothers and Sisters, both statewide advocacy groups.
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Episode 2 Reference Links:
Eugenics in the United States: Video
Goffman, E. (1963). Group Alignment and Ego Identity. In Stigma: notes on the management of
spoiled identity (pp. 105-125). New York, NY: Prentice-Hall, Inc.
Albrecht, G. L., Seelman, K. D., & Bury, M. (2001). Handbook of Disability Studies. Thousand Oaks, CA: SAGE.
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